Hemophilia Society Panaji Chapter

We Support Hemophiliacs to Reach Their Full Potential

What We Do

01.

— We Find Hemophiliacs

We try to find people suffering from this bleeding disorder and guide them how to avail care ,and live a normal painfree life.

02.

— We maintain Advocacy

There is very Less awareness about Rare disease among Doctors and General public, we take care that right medicine reaches the patients at right time.

03.

— We Strengthen the sufferers and Parents

Constant Hospital Visits, Days of immobility ,regular missing of school or work leads to huge burden on families we strengthen them with constant support.

04.

— We Educate

Greater awareness of hemophilia and its symptoms is associated with better adherence to treatment by patients,
To get Good quality medical care from Doctors we Regularly conduct medical CME,s

05.

— We Provide Care

We provide support for all life stages. We want to help our members lead fulfilling lives, make informed choices and to support and inspire others.  Most importantly we have a community who knows exactly what you are going through

06.

-We ensure Treatment for All

There is uneven treatment pattern varying according to regions,
we are working towards Goal of availability equal standard treatment for all

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What We Care For!

Conduct Exercise Program

Exercise is extremely important for people with Hemophilia  because it helps build strong muscles and protects the joints leading to less bleeds.

Conduct Regular blood tests

We conduct blood test camps for our patients tests like inhibitor screening test, hepatitis tests etc.

Empowerment Of Women

Girls and Women  with bleeding disorders and carriers come together to address their issues like treatment management, social stigma, emotional & mental health in an organised way.

Making Sure Factor Injections are available

Hemophilia treatment mainly pertains to medications which reduce suffering. We make sure that this factor injections are available at the centers.

Quality Treatment for Patients

We conduct CME,s regularly this helps in upto date treatment for our patients  

Regular Community Meetings

We come together and meet this leads to a system of sharing information ,and services among individuals having a common interest.